The Boy Whose Skin Fell Off

Thirty-year-old Jonny Kennedy died of a genetic condition called Dystrophic Epidermolysis Bullosa (EB), which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death.

Category

Documentary / Medical / Special

Original air date

25/03/2004